Diary of a Girl with POTS

The struggles. The stress. The laughs. And the accomplishments. Living with POTS is just a blessing in a really silly disguise.

POTS Videos

Please note that I do not own these videos. Nonetheless, I found these videos to be helpful for understanding POTS. 

http://www.youtube.com/watch?v=NN3PB6N6oGY

http://www.youtube.com/watch?v=I40-r3RpFjs&feature=relmfu

http://www.youtube.com/watch?v=PHydjGdg4XQ&feature=relmfu

http://www.youtube.com/watch?v=iJ9bv7jx-Ls&feature=bf_next&list=FLRRSwfzM-wyc&index=2 

http://www.youtube.com/watch?v=7h9V8ryYMcg


http://www.youtube.com/watch?v=sTCLU7jwi7s&feature=related 


http://www.youtube.com/watch?v=OTJ3x9erVBU&feature=related


Three-Part Series of Videos: (Recommended highly!!)

1. http://www.youtube.com/watch?v=Fx688XLvA8k&feature=mfu_in_order&list=UL
2. http://www.youtube.com/watch?v=bTM8RNzV6k4&feature=mfu_in_order&list=UL
3. http://www.youtube.com/watch?v=4rtcw23CFqo&feature=related

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POTS Information

  • Home
  • What is POTS?
  • What Can Help POTS
  • What to Avoid
  • Some Things Doctors May Not Tell You
  • POTS Videos
  • Websites to Visit

Invisible Diseases--Day of Visibility

Invisible Diseases--Day of Visibility
June 6th is the day of awareness for "invisible" illnesses such as POTS. Please spread the word and spread understanding.

A Little Bit About Me

My photo
Sara
United States
I have lived with a condition called Postural Orthostatic Tachycardia Syndrome (or POTS for short) since I was 14. I wanted to document my struggles and accomplishments with having POTS so that people can have a taste of what POTS is like on a daily basis. Even though I live with a medical condition, I don't let it stop me from living life!
View my complete profile

My Diagnosis

Since 2005 I have experienced POTS symptoms, but I wasn't diagnosed until 2008. I went from doctor to doctor and was prescribed countless medications and had several tests done to determine why I was having such tremendous pain throughout my body, joint pain/stiffness, palpitations, brain fogging, difficulty forming words, fast heart rate, headaches, generalized weakness, exercise intolerance, heat intolerance, extreme fatigue, and sensitivity to light, sound, and taste.

It wasn't until 2008 at the Mayo Clinic in Rochester, MN that I had the Tilt-Table Test that ultimately diagnosed me with POTS.

My Prognosis

Back in 2011, my doctor said that in about 1 or 2 years, my POTS symptoms will either disappear or improve significantly so that I will practically be normal again! Well...he was right (except it ended up being 3 years later)! I am now a "normal" functioning young adult. It feels amazing to be able to participate in life to the fullest again!

Posted

  • ▼  2011 (21)
    • ▼  May (8)
      • How it all began
      • First Episode Down. Plenty More to Go...
      • The Diagnosis and The Hero
      • "Just Keep Swimming..."
      • Finding Out Who Your True Friends Are
      • The Dysautonomia Aspect of POTS
      • Hot Weather and POTS
      • Having POTS makes me feel like I'm 90 years old
    • ►  June (5)
    • ►  July (2)
    • ►  August (2)
    • ►  October (2)
    • ►  November (1)
    • ►  December (1)
  • ►  2012 (21)
    • ►  January (5)
    • ►  February (7)
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