I am getting better. I know this for a fact. I can vacuum. I can drive. I can finally ride a bicycle! I haven't rode a bike since I first got symptoms of P.O.T.S. in fear that I would pass out or not be able to make it back home if I were to ride a good distance. I can do a lot now.
But my mind wants to do more. Go further. Push harder. But I know I can't do that just yet. I am so driven to push towards recovery, but I am not physically strong enough to do things that I want to do. That's incredibly difficult to handle. It's not like I'm depressed or terribly upset, but it sometimes makes me frustrated because my body does not cooperate with my determination! I'm feeling better and better each day so I get impatient. I want to continue to feel better but in less time! I want to be normal again. I know that is the goal of every person with a chronic condition also, just to feel better and feel a sense of normalcy.
I am extremely lucky. I have a diagnosis. I have a bright prognosis. I am starting recovery. I have such a wonderful support system of my family, boyfriend, and friends. I am lucky. I just have to realize that becoming "normal" again does take some time. If I continue pushing myself as I am doing now, I will feel even better in a faster time. So that is my hope! I am strong, and I will become stronger :)
Saturday, July 16, 2011
Sunday, July 3, 2011
RIP Meds
Today is day 2 of not having the Midodrine!! And I'm doing very well!
Yesterday I stopped taking it and I was able to vacuum 2 levels of my house! Including the stairs!!! It is amazing to me what I am now able to do. I really don't see a huge difference in having the Midodrine and not. It surprises me because I have been on the medication for well over 2 years or so and it has helped me dramatically in the past. Now that my POTS is getting better, I guess there's no need to take it and my body is working well on its own!
Besides the Midodrine, over the years I have taken and can also say Rest in Peace to since I've stopped taking these a long while ago:
-Ambien (for sleep)
-Amitriptyline (for pain)
-Celebrex (for pain)
-Diamox (to decrease eye pressure)
-Fludrocortisone (help treat cerebral salt wasting)
-Indomethacin (for pain)
-Melatonin (for sleep)
-Mestinon (decrease muscle weakness; also for myasthenia gravis treatment when doctors thought I had MG)
-Metoprolol (treat high blood pressure)
-Nadolol (increase blood flow)
-Neurontin (for pain)
-Norco (for severe pain)
-Thermotabs (salt tablets)
-Tylenol 3 (for severe pain)
For the POTsies out there like me, the ones on this list that have helped the most are: Nadolol, Thermotabs (if you don't like eating a lot of salt and would rather take a tablet of it), Midodrine (the life saver of a POTsie), and Fludrocortisone.
I only have a few more to add to this list one day. I'm still taking Provigil (helps with the loss of energy with POTS), Lyrica (helps with pain), Relafen (helps with pain), and iron supplements.
Much love to everyone out there on this wonderful holiday! Have a fantastic weekend!
And to all you POTsies, I wish for you to have an "RIP meds" list of your own very very soon too! Just know there is always hope! There is always a light at the end of the tunnel no matter how dark it may seem now. Leave a comment or e-mail me at sduncan36@gmail.com. I'm always here with an answer and a smile! :)
Yesterday I stopped taking it and I was able to vacuum 2 levels of my house! Including the stairs!!! It is amazing to me what I am now able to do. I really don't see a huge difference in having the Midodrine and not. It surprises me because I have been on the medication for well over 2 years or so and it has helped me dramatically in the past. Now that my POTS is getting better, I guess there's no need to take it and my body is working well on its own!
Besides the Midodrine, over the years I have taken and can also say Rest in Peace to since I've stopped taking these a long while ago:
-Ambien (for sleep)
-Amitriptyline (for pain)
-Celebrex (for pain)
-Diamox (to decrease eye pressure)
-Fludrocortisone (help treat cerebral salt wasting)
-Indomethacin (for pain)
-Melatonin (for sleep)
-Mestinon (decrease muscle weakness; also for myasthenia gravis treatment when doctors thought I had MG)
-Metoprolol (treat high blood pressure)
-Nadolol (increase blood flow)
-Neurontin (for pain)
-Norco (for severe pain)
-Thermotabs (salt tablets)
-Tylenol 3 (for severe pain)
For the POTsies out there like me, the ones on this list that have helped the most are: Nadolol, Thermotabs (if you don't like eating a lot of salt and would rather take a tablet of it), Midodrine (the life saver of a POTsie), and Fludrocortisone.
I only have a few more to add to this list one day. I'm still taking Provigil (helps with the loss of energy with POTS), Lyrica (helps with pain), Relafen (helps with pain), and iron supplements.
Much love to everyone out there on this wonderful holiday! Have a fantastic weekend!
And to all you POTsies, I wish for you to have an "RIP meds" list of your own very very soon too! Just know there is always hope! There is always a light at the end of the tunnel no matter how dark it may seem now. Leave a comment or e-mail me at sduncan36@gmail.com. I'm always here with an answer and a smile! :)
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