Invisible Disease Awareness Day

Day of Visibility is June 6th! Every June 6th, we pull together as one large family across the globe and spend that day devoted to raising visibility about Invisible Diseases! 


"The More We Bring Our Voices Together, The More Likely We Are To Be Heard!" 


Dysautonomia, Chronic Fatigue Syndrome, Fibromyalgia, and Lyme Disease are a few of the popular Invisible Diseases.


Dysautonomia (autonomic dysfunction) is a broad term that describes any disease or malfunction of the autonomic nervous system. This includes Postural Orthostatic Tachycardia Syndrome (POTS), Vasovagal Syncope, Mitral Valve Prolapse Dysautonomia, Pure Autonomic Failure, Neurocardiogenic Syncope (NCS), Neurally Mediated Hypotension (NMH), autonomic instability and a number of lesser-known disorders.


These Invisible Diseases are causing a silent pandemic and we are in a mass medical emergency. The medical community doesn't even recognize Invisible Diseases in patients sometimes because the symptoms of these conditions mimic other diagnoses. This is why it is so difficult for patients with Invisible Diseases because they do not get help from the medical community, which in turn doesn't help the fact that family members and friends do not believe their symptoms to be real. Well they are real. They are life-altering. They limit patients' day-to-day living. Some patients cannot attend school or are even wheelchair-bound or bedridden. Invisible Diseases should not ignored or be invisible anymore!! Visibility is needed for patients to receive proper medical care and support so they can feel better and be cured!!


Raising Visibility is the way that we are going to get the help that we need! Let’s work backwards from our goal... We need a cure. We need extensive research to find the cure. But in order to get research teams together, we need the funding. The only way to get enough funding is to let the people know how and why we need it!


Please check out this site linked below and these YouTube videos for more information!! Also, you may message me on this Events page or privately message me for more information! Please spread the word about Invisible Diseases. Tell one person! If you tell just one person, that is one MORE person that knows about Invisible Diseases!

http://www.invisiblediseases.com/Home.html

http://www.youtube.com/watch?&v=RU43ZVMhU_8

http://www.youtube.com/watch?v=iJ9bv7jx-Ls